Maurice’s story - 19 December 1987
‘I developed swellings in my glands and my bowel movements became difficult. I told my doctor, whose reaction was “glands, that’s nothing - feel mine. I hope you’re not becoming obsessed with your bowels.” I was sent for a blood test, but as there was no HIV test in 1982, I was told that I must have picked up a virus which had now gone. But I think that it could have been HIV as two years ago I was diagnosed as being antibody positive. Since that day, I have to thank the Sussex AIDS Helpline, from whom I had support from the first moment of the shock of my diagnosis. I very soon joined the Helpline myself - it was the only way I could cope with everything. I had to know as much as I could about AIDS. After a while I realised I wanted to work with people with AIDS, so I did a course in massage techniques, so I could offer something useful to the people I worked with.
Because I have had a full life, I can’t be too sad, though I’m not ready to go yet and I’m going to put up a fight. The people I feel sorry for are the young ones who thought they had a full life to lead, and now live in fear and doubt.
Today at St. Peter’s Church, I witnessed the most beautiful service of my life – a memorial to those in Sussex who have died of AIDS. Bless whoever in the Helpline who first thought of this. I shall remember it for the rest of my life, however long that might be, and I shall remember my departed friends.’
Maurice died on the 12 January 1988, quite suddenly but peacefully.
Sussex AIDS Centre
“We held the first Brighton and Hove public meeting on AIDS in 1984 at offices in Lansdowne Place, Hove. Graham Wilkinson and I split the small cost of hiring the room and invited someone from the recently formed THT to come along and explain what they were doing in London. Both Graham and I had joined THTs small Social Work group which met at their original tiny offices in London – at that time only consisting of a couple of rooms. So, it was at this first public meeting that a handful of us volunteered to set up the Sussex AIDS Helpline.
We knew the person who at the time managed the Well-Women Clinic above a shop on the corner of Western Road and Waterloo Street in Hove. They very kindly agreed to let us use their offices in the evening when they were closed and allowed us to use a telephone line for free.
Graham and I both worked together as Social Workers in the Hanover Team based opposite St Peters Church, and we managed to get permission to use our offices in the evening for training and support groups. As professional social workers we were able to put together a training programme for the early volunteers to help handle phone calls. Graham or I would either take the calls ourselves, or be there as support for the other volunteers.
For the first 2 years Sussex AIDS Helpline got no official funding. We managed to get by with volunteer time and effort, meeting in each other’s homes, raising awareness in pubs and clubs, and by borrowing facilities and resources from the Well Women's Clinic and Social Services Hanover Team. A couple of years later we became the Sussex AIDS Centre and Helpline.”
Clive Stevens